That sounds incredibly frustrating and painful — six broken bones is serious, and it makes complete sense to want answers. What's happening with your legs is likely connected to how myotonic MD affects muscle control and strength.
With myotonic MD, muscles can weaken and also have trouble relaxing properly after they Show Full Answer
That sounds incredibly frustrating and painful — six broken bones is serious, and it makes complete sense to want answers. What's happening with your legs is likely connected to how myotonic MD affects muscle control and strength.
With myotonic MD, muscles can weaken and also have trouble relaxing properly after they contract. This combination can cause legs to suddenly give way without warning, making falls — and injuries — much more likely.
The "knots" and cramping you're feeling are also a recognized part of myotonic MD, where muscles tighten and struggle to release. Not receiving any treatment given what you're going through is a real concern. There are options that can help, and it's worth pushing for them. Here are some things to discuss with your doctor:
- Physical and occupational therapy to help strengthen muscles and improve stability
- Mobility aids like braces, canes, or walkers to reduce fall risk
- At-home stretching to ease muscle tightness and cramping
- Medications to help manage pain and muscle symptoms
- Heart and breathing monitoring, as myotonic MD can affect those systems too
A myMDteam member once shared that after years of unexplained symptoms and pain, finding a doctor who truly listened made all the difference.
Please advocate strongly for yourself at your next appointment — what you're experiencing deserves proper treatment and support.
September 17
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