Same ppl say I don’t look sick or faking it. But I can walk up stairs. My husband tells me to be slow and walks in front of me or behind me in case I fall since I fall at times
I am 36 with DM1 I can still walk and my condition is completely invisible to the Human eye. When anybody finds out they are like wait, what? You dont look or act sick.
I am like you! I'm a manifesting carrier of DMD. And like you my leg and arm muscles are weakening making stairs difficult. I'm 70 years old now and starting to have heart issues and swallowing issues.
I have not been directly diagnosed with DMD! I am sort like you! My diagnosis is a Mosaic Manifesting Carrier of Duchenne Muscular Dystrophy!
Im like you. I need to use my arms to help me use the bannister to step up. Como g down stairs is a very jerky motion and precarious