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August 24
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A myMDteam Member

Same ppl say I don’t look sick or faking it. But I can walk up stairs. My husband tells me to be slow and walks in front of me or behind me in case I fall since I fall at times

October 7
A myMDteam Member

I am 36 with DM1 I can still walk and my condition is completely invisible to the Human eye. When anybody finds out they are like wait, what? You dont look or act sick.

October 7
A myMDteam Member

I am like you! I'm a manifesting carrier of DMD. And like you my leg and arm muscles are weakening making stairs difficult. I'm 70 years old now and starting to have heart issues and swallowing issues.

October 7
A myMDteam Member

I have not been directly diagnosed with DMD! I am sort like you! My diagnosis is a Mosaic Manifesting Carrier of Duchenne Muscular Dystrophy!

September 16
A myMDteam Member

Im like you. I need to use my arms to help me use the bannister to step up. Como g down stairs is a very jerky motion and precarious

September 15

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A myMDteam Member asked a question in Newly Diagnosed group 💭
San Francisco, CA

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