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I’m 25 year old with congenital muscular dystrophy I have started losing muscle over the last couple of years and my legs core and hips are weak and now my backs constantly hurts and can barely bend down walking hurts constantly only time it doesn’t hurt is if I lay still and don’t move

June 30
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myMDteam

Living with constant back pain on top of already weakened legs, hips, and core sounds absolutely exhausting — and it makes complete sense that your back is struggling. When the muscles around your hips and core weaken, your back has to work much harder to compensate, which can lead to serious pain and stiffness.

The good Show Full Answer

Living with constant back pain on top of already weakened legs, hips, and core sounds absolutely exhausting — and it makes complete sense that your back is struggling. When the muscles around your hips and core weaken, your back has to work much harder to compensate, which can lead to serious pain and stiffness.

The good news is there are people specifically trained to help with exactly this. Here are some key supports worth exploring: - Physical therapist — They can design gentle, personalized exercises to help reduce pain, support your spine, and slow muscle loss without overdoing it
- Occupational therapist — They can help you find safer, less painful ways to do daily tasks like bending or walking
- Assistive devices — Braces, orthotics, or mobility aids like a cane or walker can take pressure off your back and legs
- Pain management specialist — If pain is constant and limiting movement, a specialist can explore medication or other relief options

It's really important to bring this up with your care team as soon as possible. Constant pain that limits movement is a signal your body needs more support right now — and you deserve that support.

June 30

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