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A myMDteam Member asked a question 💭
Vancouver ( Felida ), WA

Due to progressive weakness, I use the desk to support my body weight. It’s causing other issues in my elbow and wrists. I have an attachment for my desk that I lean on, but requires the keyboard to extended further from myself, which makes it hard to type all day.

I’ve also tried so many chairs due to back/ hip/ shoulder/ face/ front neck/ pain, without success. ( fyi myofascial bodywork is helpful with these concerns. And addresses my constant headaches/ migraines)

I resort to sitting on one… read more

May 24
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myMDteam

What desk and chair accommodations or modifications are recommended for someone with Limb-Girdle muscular dystrophy experiencing progressive weakness, pain, and stability challenges while working?

First, it's worth saying — the determination to keep working is genuinely inspiring, and finding the right setup can make a real Show Full Answer

What desk and chair accommodations or modifications are recommended for someone with Limb-Girdle muscular dystrophy experiencing progressive weakness, pain, and stability challenges while working?

First, it's worth saying — the determination to keep working is genuinely inspiring, and finding the right setup can make a real difference in how long that's sustainable.

Since leaning on your desk is straining your elbows and wrists, a forearm support tray that attaches directly to your chair (rather than the desk) might help redistribute that weight more evenly while keeping the keyboard closer to you.

For typing specifically, consider these options:

- Ergonomic split keyboards — reduce wrist strain and allow more natural arm positioning
- Voice-to-text software — reduces typing demands significantly on harder days
- Trackball mouse — requires much less arm movement than a standard mouse
- Keyboard tray mounted under the desk — brings the keyboard closer to your body

For seating and trunk support, since standard chairs haven't worked:

- Tilt-in-space wheelchairs or seating systems — these can be customized to support pelvis, hips, trunk, and arms simultaneously
- Custom wheelchair seating inserts — built specifically for your body's positioning needs
- Seat wedge cushions — may replicate the elevation you get from sitting on your foot, more safely

The shortness of breath with the back brace is worth flagging urgently with your healthcare provider, as breathing muscles can be affected by muscular dystrophy.

An occupational therapist who specializes in workplace accommodations would be the most valuable next step — they can assess your specific setup and recommend assistive technology or workstation modifications tailored to you.

May 24

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