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A myMDteam Member asked a question 💭

I have paramytonia congentia and myotonic muscular dystrophy, I can't walk anymore without walker, lots of pain all the time. I also have severe neurathapy

September 24, 2025
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myMDteam

Myotonic dystrophy is a specific type of muscular dystrophy characterized by myotonia - where muscles have difficulty relaxing after contracting. For example, you might have trouble releasing your grip on objects. There are two types:

• Type 1 (DM1/Steinert disease) - can be severe and appear at birth
• Type 2 (DM2) - Show Full Answer

Myotonic dystrophy is a specific type of muscular dystrophy characterized by myotonia - where muscles have difficulty relaxing after contracting. For example, you might have trouble releasing your grip on objects. There are two types:

• Type 1 (DM1/Steinert disease) - can be severe and appear at birth
• Type 2 (DM2) - generally milder and diagnosed in adulthood For managing pain associated with muscular dystrophy, several treatment options may help:

• Physical and occupational therapy to maintain strength and flexibility
• Home stretching exercises to prevent muscle contractures
• Mobility aids like your walker to improve movement and prevent falls
• Pain management medications (discuss with your healthcare provider)
• Specialized treatments for neuropathic pain, which can cause burning, stabbing, or tingling sensations

September 24, 2025

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Exeter, NH

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