It sounds like there may be a mix-up — myasthenia gravis is a different condition, and this community is specifically focused on muscular dystrophy (MD). If your son has been diagnosed with muscular dystrophy, there are some great support groups available!
Here are some organizations that offer support for families:
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It sounds like there may be a mix-up — myasthenia gravis is a different condition, and this community is specifically focused on muscular dystrophy (MD). If your son has been diagnosed with muscular dystrophy, there are some great support groups available!
Here are some organizations that offer support for families:
- Muscular Dystrophy Association (MDA) — Offers online support groups for adults with MD and for parents and caregivers
- Parent Project Muscular Dystrophy (PPMD) — Great for families with a newly diagnosed child
- The Jett Foundation — Online support groups for parents
- Team Joseph — A nonprofit founded by a parent of a child with DMD
If your son does have muscular dystrophy, speaking with his healthcare provider is always a great first step to finding the right local or online support group for your family.
May 4